Mute
Sadie & Family
Today is World Sanfilippo Awareness Day. Will you share their story today and help us get closer to a cure? Sanfilippo Syndrome is a rare neurodegenerative genetic disease. Symptoms include respiratory issues at birth, developmental delays, autism features, dementia, brain atrophy, seizures, hyperactivity, and loss of the ability to walk and eat. All these girls have Sanfilippo type A, but the disease varies greatly. Some have issues with food allergies or aversions, while others don’t. Some ha...
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