Mute
Sadie & Family
Most of us take eating for granted, but it’s more complicated than you think, especially when you have a neurodegenerative disease like Sanfilippo Syndrome. Most kids with Sanfilippo will get a feeding tube around age 9, as their feeding abilities decline. Sadie is almost 8 and can still feed herself. But most of the time, we do it to ensure she’s taking small bites and chewing it up.#sanfilipposyndrome
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